This custom was for a friend that Paul and I met through other VMK player friends, This is Madison Reed a wonderful, loving and happy 15 year old who also played VMK as PrincessMariro. She's not just any old normal 15 year old though, she is a miracle and is an amazingly passionate young lady. And what is so amazing about Madison you ask? Madison has Spinal Muscular Atrophy (Sma type 1), but she doesn't let it phase her, She takes everyday as a gift she cherishes every moment and memory she makes and she has a love for a certain boyband (Big time rush) :-D
What is Spinal Muscular Atrophy (SMA)?
Spinal Muscular Atrophy (SMA) is the number 1 genetic killer of children under 2 years of age. It can strike a person anytime throughout their life - infant, toddler, teen or adult.
It is a group of inherited and sometimes fatal diseases that destroy the nerve cells (motor neurons) controlling voluntary movement, such as, crawling, walking, head and neck control, as well as swallowing and breathing. It affects the anterior horn cells located in the spine.
Facts About SMA
- 1 in 40 people are carriers of the SMA gene.
- 1 in every 6,000 live births is affected.
- Over 25,000 people in the USA have SMA
- SMA does not discriminate when it comes to sex, age, race or ethnic background.
- Both parents must carry the SMA gene.
- There is a 1 in 4 chance of having a child with SMA.
- There is a 50% chance of having a child who carries the gene.
There are 4 types of SMA:
- TYPE 1 (WERDNIG-HOFFMAN): Infantile; Most Fatal
- TYPE 2: Strikes between 9 - 18 months
- TYPE 3 & 4: Can strike at any time between 18 months to teen years to adult years
Please take a moment to check out Madison's site and learn some more about this genetic disease and learn about how to donate towards research that could potentially save lots of babies in the future, they are so close to a cure but it can't happen without funding! http://www.miracleformadison.org/journey.htm
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